This one came outta,… “Left Field”.
by Maxi on Feb.25, 2010, under Crohn's, Medical

The place where everything that effects me comes from!
After roughly a month & a half – maybe two of steady improvement I find myself right back into hell. Crohn’s reared its ugly head ( or ass as it were ) to remind me who is in charge here. It certainly isn’t me.
While most people have a coffee, grab the newspaper, and head off for their morning constitutional. I head of for my morning hemorrhage. Please, try not to envy me. Ya know, while I am whining like I little bitch – and because even I don’t remember what I babble about on here, I’ve also developed this fancy schmancy vision related migraine thing (Ocular Migraine). It starts like a little area that I can focus on or make out letters this size. It then, over the course of 20 – 30 minutes, the dot spreads until I have no peripheral vision at all.

This is very close to what I see only it takes up to 35 mins to run its course. Sucks right?
You could be standing right next to me and I wouldn’t know it. Really hope this is a med thing but doc’s don’t think so altho granted – they dunno. I think we can all agree to use the word blindness however when one of these little huckleberries show up. For a graphic/visual guy it’s less than dandy.
Anyway. If there is a hospital stay or emergency of some mind I’ll be sure to pop updates here, or my wife Shels will.
OK People. KEEP THE FILTH!
UPDATE February 28th, 2010 11:16 pm MST: I might as well just dig up an old post n’ paste it here. Woke up Sat morning, started barfin’ my head off – got light headed – got light assed as well ( not a fun trifecta ) Shels called the ambulance yadda yadda yadda I’m in the hospital again. Really, other than that I got nothing to report. Other than so far,… SO far this hospital stay is going better than that last dibacle I had. As always, if anything new pops up ( or out for that matter ) you can count on me to give you TMI. And as always, seriously, thanks guys for the well wishes. Really do mean a lot to me!
UPDATE March 1st, 2010 1:06 pm MST: I actually slept swell, but woke up in more pain today. What sucks is there isn’t anything they can do but try to stabilize me and theres no telling how long that’ll take. Once they do I go home but they can only give me so much junk. Too much and they kill my other hip. By junk I mean Steroids. Side note, next door & up over my room they are doing some kind of construction on the hospital. Drilling. Makes feelin’ like shit that much more enjoyable. Gotta love my luck, aye?
UPDATE March 5th, 2010 5:06 pm MST: I was released from the hospital March 2nd, late afternoon and felt “good”. I took my usual battery of meds in the evening and still felt ok. Before bed I ate a sandwich just to have something in my gut then took the bane of my existence, Prednisone. Sure enough by 7AM the 3rd I was laying on the floor locked in pain, barfin’ my head off and waiting for the ambulance. I was admitted almost right away and now, here I sit once again in Littleton Hospital. No plan, no ideas, I’m just here and not leaving until I can hold down meds. This level of illness & its effects on my really wiped me out. This one was, and kind of still is, BRUTAL. Sorry I haven’t replied to any calls or emails, I will when I don’t sound like a corpse. Actually its hard to talk from all the vomiting. Perfect for LIVER vocals, bad for communication. So thats whats what people. Always a party in Maxiland.
UPDATE March 8th, 2010 6:16 pm MST: I never want to get my hopes up with this crap but here’s the deal so far. First, thanx again for the well wishes. Who ever has the Max VooDoo doll and the grudge, enough is enough aye? I’m eating food finally. After not eating for 5 – 6 days its a welcomed change. Lost a lot of weight. The test now is can I eat and hold down meds. If not, I get to live here at the hospital some more. This episode has lasted 10 days so far. Well over 80 total days in the hospital since getting sick 5 years ago. Really wouldn’t mind going home for a change – that would be swell. Next post will be either good news on my toleration or bad news on how I’ll be stuck here in the hospital probably another week. Thanks for checking in people.
UPDATE March 11th, 2010 8:06 pm MST: I AM HOME! YAY! Compared to my other long term stays in the hospital this didn’t suck as much. No matter how you look at it 13 days sucks pretty much on every level but overall I was well cared for. Not like the last debacle where they kept screwing up my pain meds and I suffered most of the time I was there. Being home is the good news. The bad ( but could be good news eventually….maybe ) or not so great news is the GI docs are trying a new ( actually really old – just new for me ) drug to combate my Crohn’s. It’s called Methotrexate. It’s been around for a long time treating everything from Cancer to R.A. to who knows what. It really is just one more shot in the dark but all things considered the “…throw it at Max & see if it sticks.” approach to medicine for me is probably just as successful as a brain trust room full of geniuses at the Mayo Clinic. So for now Methotrexate it is a long with the evil prednisone. I’m home thats all that matters. I still have a ways to go, lots of recovery. Thanks guys for checking in on me. I won’t be updating this part any more but when I get a wild hair I’ll post more on the progress of this Methotrexate crap.
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